Patient Story – Ben
Ben was diagnosed with acute lymphoblastic leukaemia (ALL) in March 2007 when he was seven years old. Ben’s mum,
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We’ve provided a list of organisations that provide a variety of different forms of support and help for families affected by childhood cancer. Click the organisation name to visit their website.
Matches blood stem cell and bone marrow donors to people with blood cancer and blood disorders. Also provides support to patients and conducts research into bone marrow treatments.
Formerly known as Bloodwise, Blood Cancer UK is dedicated to beating blood cancer, by funding research and supporting those affected by blood cancers.
Provides support, encouragement and advice to families whose children have a cancer diagnosis: both during and after treatment.
Children’s hospital located in Central London. Accepts applications from international patients.
Provides family support, counselling, advice and organises stress-free holidays and staycations to support children with cancer and their families.
A national blood cancer charity that organises support groups, a 24 hour helpline, hospital travel funds and information on leukaemia.
Offers emotional, physical, financial and practical support for people going through cancer.
Set up by parents, aims to help children with cancer and their families in the Surrey and South West London area.
Raises funds for Neuroblastoma research and offers information and support for families.
Provides support for families of children affected by neuroblastoma, including access to treatments and clinical trials if they are not available on the NHS.
Improves the lives of teenagers and young people with cancer with specialist units across the UK.
If you’re aged 13-24 and have experienced childhood cancer, Teens Unite offer free, unlimited support, whenever you need it. Their in-person and digital activities, and residential stays, are new experiences for you to enjoy with other teenagers and young adults in a similar situation.
Funds research into child and adult brain tumours, and offers support and information to anyone diagnosed with a brain tumour and their carers.
A charity dedicated to helping people affected by retinoblastoma, a rare form of eye cancer.
Offers day to day support for families affected by childhood cancer as well as financial grants, accommodation and bereavement support.
Provides grants to low income families caring for a disabled or seriously ill child.
Offers financial assistance and support for families affected by Neuroblastoma.
Aims to help and support campaigns to raise funds for medical treatment/equipment not available on the NHS.
The Beads of Courage UK programme offers support and strength to families when they need it most.
Arranges travel insurance for people with a serious illness or pre-existing medical conditions.
Provide real hair wigs to children and young people, up to 24 years, who have lost their own hair through cancer treatment or other conditions.
Provide free surgical gowns or pyjamas for babies and children in hospital, up to age 16.
Provides free pre-paid SIM cards and mobile phones (when available) to those living with cancer.
Provides specialised equipment, support and life skills for disabled children.
Offers support when a child is bereaved, or when a child has a terminal illness. See their online shop for books and information for professionals and families.
A helpline for anyone affected by the death of a child of any age, from pre-birth to adult, under any circumstances, however recent or long ago.
A confidential service that can help you find a qualified counsellor or psychotherapist in your local area.
A network of trained parent volunteers who support struggling parents.
Offers practical, financial and emotional support to families affected by childhood cancer including respite breaks, financial grants and support groups.
Offers support and counselling for children’s mental health in schools.
Provides emotional and practical support to families who have a child with a life-threatening or terminal illness through support workers.
Support for families who have a child with a life-limiting illness including a helpline, as well as legal advice service.
Provider of services to bereaved children, young people and their families.
Barretstown offers free, specially designed camps and programmes in Ireland for children and their families living with a serious illness – supported behind the scenes by 24 hour on site medical and nursing care.
Based in the US, they organise treats and days out for children with life threatening illnesses.
Organises life enhancing biennial trips to Florida for around 72 children from across the North of England.
Rebuilds confidence after cancer, using sailing to support, empower and inspire young people between the ages of 8-24 in embracing their future with optimism.
Charity in Surrey that provides day trips, short breaks and holidays for families of children with cancer. Also receives special requests, often for gifts or wishes, to make hospital stays a little more bearable.
Provides short breaks in a caravan on the Kent coast, for families who are affected by childhood cancer. Set up in memory of Eva.
A resort in Florida where children with critical illnesses and their families are treated to weeklong, cost-free vacations.
Holiday homes in the New Forest and Hayling Island for families of children who have cancer and life limiting illnesses.
Provides respite breaks for individuals, families and groups who support children with additional needs, including life limiting illnesses.
Organise holidays for sick or disabled children and adults.
Runs activity camps for children and young people aged 8-17 who are affected by serious and life-limiting illnesses.
Huddersfield based charity that provides holidays for children and their families who have been affected by cancer, life limiting illness and bereavement.
Offers play and distraction services in hospitals, grants wishes and organises events for children with serious illnesses including private film screens, flying days and boat parties.
Organises special days out for seriously ill young adults aged 16 to 40.
Makes dreams come true for seriously and terminally ill children across the UK.
Grants wishes for children with life-threatening illnesses.
Grants wishes for seriously ill children in the UK aged three to 18 years. Can grant hospital ward wishes and organise outings and large scale events.
Grants ‘handcrafted’ wishes for children and young people with life threatening illnesses across the UK and Ireland.
Help children with cancer regain their physical fitness, strength, mental wellness and confidence by giving them bikes, tandems and specially adapted trikes to children and young people who have been affected by cancer.
Every year, Fatboys Charity delivers Christmas gifts to children who are suffering from cancer or other life threatening illnesses.
Personalised, hand-painted shoes for children and young people living with cancer. These shoes can capture the child and all their favourite things: games, sports team, music, animals, colours, TV programmes and more.
Patient Story – Ben
Ben was diagnosed with acute lymphoblastic leukaemia (ALL) in March 2007 when he was seven years old. Ben’s mum,
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