Projects we fund

Overview

1. The British Childhood Cancer Survivor Study (BCCSS) which includes 35,000 individuals diagnosed with cancer aged under 15 years, in England, Wales or Scotland, between 1940 and 2006 and who survived at least 5 years from diagnosis
2. The Teenage and Young Adult Cancer Survivor Study (TYACSS) which includes 200,900 individuals diagnosed with cancer when aged 15 to 39 years, in England and Wales, between 1971 and 2006 and who survived at least 5 years from diagnosis

What difference will this project make?

• Developing standardised evidence-based clinical follow-up guidelines for doctors and nurses
• Preparing “survivorship care plans” for survivors by doctors and nurses, summarising the treatments which survivors received and potential side-effects which are associated with those treatments
• Providing educational material for health care professionals, particularly family doctors
• Planning the treatments of future patients with a view to reducing ‘side-effects’ experienced after their cancer treatment
• Advising national health authorities in relation to subgroups of survivors at particularly high risk for consideration of potential recall for counselling, screening or other actions
• Identify low risk groups for less intensive follow-up and less frequent need to visit hospitals
• Provide the NHS with evidence useful in preparing “Service Specifications “which enable the risk stratification of individual patients at completion of cancer treatment
• Providing costs of caring for different subgroups of survivors
• Providing information on geographical variation in risks of side-effects