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My life was forever changed at the age of 13. Cancer robbed me of all of the things I’d ever known and loved and left me disabled and in constant pain.
About halfway through my radiotherapy, I started getting horrendous shooting pains down my legs that started impacting my mobility. Everyone, including all the doctors, thought this was temporary, that the radiotherapy was just irritating my nerves and that once I finished treatment it should resolve itself. All I wanted was my old, normal life and my old self back as I no longer recognised either of those. Unfortunately, that never happened and I started relying on my wheelchair more and more until I needed it permanently.
The spinal tumours had been slowly compressing and damaging my nerves for some time, and then the necessary surgery and radiotherapy inflamed my already damaged nerves. This left me with irreparable damage and extreme, debilitating chronic pain. Since then, I have been in pain every second of every day for nearly eleven years and unfortunately, I will be for the rest of my life. Cancer has taught me a lot, how strong and resilient I am and who and what is important in my life. My family were there for every single procedure, scan and radiotherapy session, they were my absolute rocks and still are. I know how incredibly lucky I am to be here, to be able to share my tailbone cancer story and to have been in remission for almost 11 years now because not everyone is that lucky.
Your donations fund research into the long-term health impacts from both the disease and treatments children and young people, like Leah, face.
Leah’s story
Leah was an active, energetic and sporty 13-year-old whose life changed when she was diagnosed with stage 1 spinal ependymoma.
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We are developing our knowledge about why children develop cancer and we are gaining new insights into the genetic and environmental causes of cancer to see if prevention is possible.
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