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Reggie was diagnosed with acute lymphoblastic leukaemia on 20 January 2022 when he was just eight years old. His mum Carly tells their story so far:
It all began in September 2021 when Reggie started complaining about a backache while sitting on the sofa and playing. At first, we thought it was just from the way he was sitting with his iPad, but over the next few weeks, he mentioned the pain a few more times. We noticed Reggie wasn’t playing with his friends and just wanted to sit next to us. He said he didn’t have the energy to play and was always cold.
On the morning of January 20, we went for blood tests. The doctor said we would get the results in about ten days. But that afternoon, at 1:50 pm, I got a call saying we needed to take Reggie to the hospital immediately because he needed a blood transfusion.
At the hospital, doctors came in and out, asking questions. Reggie’s temperature was now 40 degrees, and his heart rate was 213. After many consultations, I overheard doctors talking to Great Ormond Street Hospital (GOSH). Three doctors then took us to a private room, leaving another doctor with Reggie. That’s when life as we knew it changed. They told us, “I’m so sorry, we have found something in Reggie’s blood.” My husband asked, “It’s cancer, isn’t it?” The doctor replied, “Yes, and we are so sorry.”
We were transferred to GOSH, where we met an amazing team. They explained the next steps, including an operation to put a port in Reggie’s chest for chemotherapy. Two days later, we found out Reggie was allergic to one of the chemotherapy drugs. But the doctors had a Plan B: immunotherapy.
To our delight, the immunotherapy started to work. Reggie is now two years into his treatment and is doing well. We still have a way to go, but his bravery and positive attitude amaze us every day. We cannot thank our hospital and all the amazing charities enough.
Carly, Reggie’s mum.
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Reggie’s story
Reggie was diagnosed with acute lymphoblastic leukaemia on 20 January 2022 when he was just eight years old.
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Professor Cristina Lo Celso and her team aims to identify treatment combinations that are as or more effective than current chemotherapy but with much fewer and less serious side effects.
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