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Patient Story – Libby K

Libby: Full Circle

A tumour was discovered in Libby’s brain when she was just eleven weeks old. This episode captures Libby’s close bond with her family, and the tireless support of her parents, who have been her strength during her cancer journey. She talks candidly about her two brothers who have always been there for her, including her brother Seb who was inspired by Libby’s journey and now works for Children with Cancer UK.

Living with a shunt

I am now 19 years old and still have the same shunt! Specialists have previously told me that it is likely that my shunt is no longer working, but in many ways, this is a huge positive for me as it means that my brain has learnt to cope without it. I find this quite incredible, considering it was such a big surgery. I didn’t walk until the age of two but I am very lucky in that I live a very normal young adult’s life. That’s not to say I find everything easy. I do struggle with some of the common conditions that hydrocephalus can cause, but I have found there are usually ways of coping with them so they don’t stop me enjoying life. I suffer from mild anxiety so I have learnt to carefully plan everything in advance. At school, it took my teachers and I some time to work out how I learn best, but they were really supportive. My coordination skills are not always on my side which is a challenge because I really enjoy sport. Running and singing are also real pleasures. In fact, singing has increasingly become a huge part of my life over the years. Over the last 18 months, with the support of my lovely singing teacher, I have achieved the Associate of the Royal School of Music Diploma (ARSM), which I am so very proud of, especially because I never thought I would achieve something like that.

I never thought I would achieve something like that.

Future dreams

Singing is something that I find to be very beneficial for my anxiety and is my ‘go to’ coping strategy if I am having a tricky day – and it always makes me smile. Last year, I completed my first ever half marathon running event, for Children with Cancer UK which was also something that had been on my bucket list. It was a fabulous feeling to get it ticked off! I work with children in a nursery, as an early year’s practitioner, and am currently also in the process of completing my Level 5 Childhood Studies Foundation Degree, at Yeovil College University Centre. I love my job, and the degree, although tough, is allowing me to gain further knowledge and understanding so that I can continue to support children as best as I can. I have some wonderful friends at home, work, and college. I still have many aspirations for the future. Although it sometimes takes a lot of resilience and courage, I don’t let my condition get in the way of my dreams.

Libby, March 2024

Libby smiling at camera in Summer

How you can help

If you’ve been touched by Libby’s journey, help us invest in the high quality research that really matters which would otherwise go unfunded.

This helps to support children with cancer so they can be with their families for longer.

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Have you or a family member been affected by childhood cancer?

Many of our supporters have been affected by childhood cancer – either through family, friends or their own personal experience. These patient stories can help inspire others to get involved with us, or can support our media work.

If you have a story that you would like to tell, please contact us by email.

 

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