Nieve struggled with weight loss
While all this was going on Nieve was being (nasogastric) fed, and we struggled to find a feed that she could tolerate. She lost a lot of weight and was being sick several times a day, despite anti-sickness medication. Eventually we found a feed that Nieve could keep down and she was finally allowed home. This was a huge boost for our family, especially Nieve’s then seven-year-old sister, Francesca, who had struggled with being apart from her little sister for so long. Nieve continued to have
chemotherapy as an outpatient for a further 10 months. She also underwent three weeks of
radiotherapy, and various minor surgeries. Nieve remained fairly well for the remainder of her treatment, with her biggest issue being sickness and maintaining her weight.